Rare Patient Voice is a platform that is exclusively designed for patients with rare or common diseases, as well as family caregivers. By signing up, you get the chance to be part of various research studies. These connections allow you to participate in research studies and share valuable opinions and experiences. This can be a unique way to earn some extra money.  Since 2013, they have awarded patients and caregivers with over $13 million.

Now, you might be wondering if joining Rare Patient Voice is worth your time and effort.

The truth is, it’s not just about the money. The real value lies in the impact and the contribution you can make. Your experience and knowledge can help shape the future of healthcare and treatments. It’s an opportunity to voice your thoughts and experiences in a way that truly matters.

Before deciding whether Rare Patient Voice is right for you, it’s essential to understand how it operates. By being a part of these studies, you can earn money all while also contributing to valuable research. It’s a win-win situation for those who fit the criteria.

If this sounds like something you want to be part of, let me show you how it works.  As always, I’m 100% honest in everything I recommend.

Let’s begin!

Who Can Join?

If you’re interested in joining Rare Patient Voice, there are a few things you should know.

First, it’s available in the US, UK, Canada, France, Italy, Spain, Australia, and New Zealand. So, if you don’t live in one of these countries, unfortunately, this opportunity isn’t for you.

Now, who can actually sign up for this panel?

As noted, you need to either have a medical condition or be a caregiver. This is key because the studies on Rare Patient Voice are specifically aimed at these groups.

When you decide to sign up, you will start by completing a registration survey.

This survey is pretty important. It’s where you share information about your medical condition or the condition of the person you’re caring for. Being honest in your answers is crucial. The information you provide helps Rare Patient Voice match you with the right studies.

After you finish the survey, you will receive a verification email. Clicking the link in that email is the final step in submitting your application. Then, it’s a bit of a waiting game. Rare Patient Voice will review your application, and this can take a few weeks. I know, it seems like a long time to wait.

Once you’re accepted, all you have to do is keep an eye on your email. Invitations to participate in studies will come directly to your inbox. Remember, these studies are your chance to contribute to important research while also earning some extra money. So, staying on top of your emails is key to making the most of this opportunity.

Earning Money with Paid Studies

Let’s first talk about how you can earn some money through Rare Patient Voice.

This site is a bit different from others because it specifically focuses on people with medical conditions or those who care for them. If you fall into one of these categories, you’re in the right place.

Once you join Rare Patient Voice, you should start getting emails inviting you to participate in paid research studies. It’s important to keep an eye on your inbox so you don’t miss these opportunities. You wouldn’t want these invites ending up in your spam folder, so make sure to add Rare Patient Voice to your list of trusted senders.  Also, if you want, you can look at the official website and see the most current studies available before you even sign up.  Here’s what it looks like:

The nice thing about Rare Patient Voice is that they match you with studies that are directly related to your condition or the condition of the person you care for. This means you’re not just filling out random surveys, but you’re actually contributing valuable information that could help in finding treatments or cures for various medical conditions.

However, it’s important to be honest about your situation. If you don’t have a medical condition and you’re not a caregiver, then this isn’t the place for you. It’s not right to pretend just to make some money.

For those who are eligible, you should know that most of the studies are surveys. They’re pretty straightforward and don’t take much time. But sometimes, you might get invited to participate in studies that require more of your time, like phone interviews or focus groups. These in-depth studies usually pay more because of the extra effort and time you put in.

When you complete a study, you get paid right away. I’ll talk more about the payment process later.

While you can earn a decent amount from Rare Patient Voice, the chance to participate in studies doesn’t come up all the time. There could be weeks or even months without any invites. So, it’s not the most reliable source of income, but it’s definitely an interesting way to earn some extra cash while contributing to important research.  As I mentioned, it’s more of a way to offer valuable insights on your disease, etc and give back to medical research.

How Much Can I Make?

It’s important to understand that the number of earning opportunities isn’t very high. This is because the studies are pretty specific and are only for people with certain medical conditions or those who care for them. So, unless you or someone you care for has multiple conditions, you might not see a lot of chances to earn money.

The amount you earn from each study depends on the type of study you’re involved in.

For the simpler surveys, don’t expect a big payout. However, for more in-depth studies, which might take more of your time, the pay can be quite rewarding. You might earn anywhere from $50 to as much as $350+, depending on how long the study lasts. That’s pretty decent, especially compared to what you might earn on other survey sites.  The sweet spot, however, seems to be about $100 or so.  The company mentions you can make $120 per hour.

It’s true that finding a study you qualify for can be challenging. Because of this, the overall potential to earn big might not be as great as you’d hope. But, there’s something more valuable than just the money. By participating in these studies, you’re playing a crucial role in helping researchers. You’re contributing to the development of treatments and possibly even cures for various medical conditions. That means you’re not just earning money, but you’re also helping to advance medical science. I can respect that aspect.

Getting Paid

When it comes to getting paid on Rare Patient Voice, things are pretty simple. Right after you finish a study, you can look forward to your payment. But you’re probably wondering, “How does the payment actually work?” Let me walk you through it.

If you’re in the United States, your payment will be sent as a check through postal mail. It’s a bit old-school, but it gets the job done.

For those living outside the US, there are other options like a prepaid digital Mastercard or an Amazon gift card, for instance. The mode of payment varies depending on the specific study you participate in.

One of the nice things about the company is that you don’t have to accumulate a certain amount of money to receive your earnings, unlike many other survey sites. Each time you complete a study, if you’re in the US, you’ll have a check mailed directly to you after it’s approved.

On the whole, the payment method used by Rare Patient Voice is quite straightforward. But, it’s fair to say that their method feels a bit behind the times. If you prefer a faster and more modern payment method, like direct bank transfers, there are other sites that might suit you better. These sites typically offer a more convenient way to access your earnings.

Final Thoughts

Rare Patient Voice seems to be great for people with medical conditions or for caregivers. If you don’t fit into these categories, then this platform isn’t suitable for you.

For those who are eligible, patience is key. You might not get a ton of opportunities to earn, but the impact you make is significant. By participating in these studies, you’re helping in the advancement of medical technology, possibly helping researchers find cures or treatments for various conditions. In my view, this contribution is far more valuable than the financial gain.  Plus, you’re making $100+ per hour, which is nice.

If your main goal is just to make some extra cash, there are plenty of other survey and GPT sites out there, such as Swagbucks. These sites often have a broader range of earning opportunities and convenient payment methods. Plus, you’re likely to find a site that you can join, no matter where you live. So, if Rare Patient Voice doesn’t seem like a fit for you, don’t worry. There are plenty of other options out there to explore.

That’s going to do it for now.

As always, if you want to comment on your experience, feel free to do so below.